I had never had a PET scan before. It was set up for Monday 10/2/2017, to get ready for it I had to drink 64oz of water Sunday 10/01/2017, could not have any sweets, bread, and fruit I was told if it tasted good spit it out, well it would be easer to tell what I could have. I did have eggs for breakfast, Steak for lunch with raw cauliflower, and broccoli, and some cooked spinach. I guarantee that the steak tasted good and I was not about to spit it out.
I got up to Harrington Cancer Center where I as going to have the PET scan. First I was taken into this room where I laid down, she came in and gave me some radiation dye to put in my arm. She explain that this would make any cancer cells light up because it likes to take any thing it can get. I had to lay in that room with the lights turned down low for they wanted me to be completely relaxed. after an hour had passed she came in and took me to where the PET scan machine was. It looked a lot like a cat scan but maybe a little smaller. She told me it would run for at least 25 minuets. It would not talk to me and first it will do like a cat scan then a pet scan, that was the longest 25 minutes, I could not move or take any deep breaths.
10/09/2017 a week later I had my chemo treatment. First I went in and the nurse accesses my port so she could draw blood, and also have it ready to do chemo later. Then I went up stairs to see Dr. Z when he came in he had a big smile on his face. He asked if I had not heard the results of my PET scan, I told him no. He said the I am in remission and that they could not find any cancer cells. Praise the Lord. But he did tell me that since back when he did the biopsy of my hip when I first came to see him, he would like for me to get some chemo injected into my bone marrow so that I might not get cancer in my back. This was my forth out of six chemo’s and he wants me to go ahead and have the other two done also, so that means I should be through in November.
Dr. Z Told me after he made the diagnosis of my lymphoma that this was a fast growing cancer, then he said that also means that with chemo it was a fast dying cancer. With each treatment I would feel better, I believe him because I have been feeling great.
I thought this would catch me up until I have the news from PET scan. I think I had told you that before all this started I weighed 235 ponds and then I lost down to 188 Ponds. I thought I would post a before and after picture. Also as of today 9/23/2017 I have gained 7 ponds, I am up to 195 ponds. I do have to be careful though I don’t want to get back up over 200 Ponds.
Dr. M was the doctor that did the Biopsy of the lymph nodes in my belly and installed the port. He checked on me every day that I was in the hospital. He and Dr. Z was very concerned about me, they both said I was a very sick man. Any way as I improved, Dr. M told me he would like to see me in three weeks after I was discharged from the hospital.
When I went to the appointment he was so surprised at how good I looked. He examined the three incisions where he did the biopsy and was very pleased, then he proceeded to push on my belly, he was surprised how soft it was getting concerned how hard it was when he first saw me. Finley he told me he was letting me go and when Dr. Z tells me I can get rid of the port, to contact him and he would remove it.
I don’t remember If I had said what I have but It is called Non-Hodgkin’s Lymphoma Large B cell of the lymph nodes in my belly. This is in the area that keeps the intestines where they belong. They were causing a blockage thus the reason my belly was getting so tight.
I had my third Chemo last Monday the 18th. of September every thing went great. In fact Dr. Z wants me to have a PET scan on the second of October to see how things or looking on getting read of the cancer.
I have been getting my apatite back, and we haven’t had lunch so Charlotte asked me what I would like to eat for a late lunch. I decided a steak sounded good, so we stopped and I ordered a Chicken Fried Steak and yes I finished the whole thing.
I have been out of the hospital about a week and it was time to have my second chemo treatment. We went to the Harrington Cancer Center, I had to have my blood drawn first, when I went in they accessed my port which was very easy. It was so nice not to have them take it from my arm, you know where they search for a vain to poke.
After she took my blood I went to see Dr. Z, when he first came in he was surprised at how good I looked compared to seeing me in the hospital just over a week ago. I was wearing shorts and he made the comment I can see you have ankles, the swelling had gone down that much.
Next I went down to where they give you the chemo. I was a little nervous not knowing if I was going to feel as bad as I did in the hospital. I went in and set in a very comfortable chair. The first thing they asked me was if I would like to have a warm blanket, also would I like something to drink, and a snack. Even though their were several people having chemo the nurses treated each one of us as if we were the only person in there.
They started my chemo and I was told that it would be around four hours to complete all the chemo. Praise the Lord for the port, one of my treatments was called the big red. The nurse pulled out a big syringe, it was about an inch around and maybe seven inches long. She just hooked it up to the port and started feeding into my vain, I would have probable passed out if she had to stick it in my arm.
When the four hours was up, I felt good, walked out and Charlotte and I went home. I never did feel any bad side effects, praise the Lord.
I was finely released from the hospital and it felt so good to be home. After being home for a bit Charlotte asked me what sounded good to eat, I said sausage and biscuits. Before I knew it she had called our daughter-in-law to come over and baby set me while she ran to the store to get some groceries.
My sweet daughter-in-law came in and kept me company. I told her I was fine and that she did not need to stay. Well she told me to hush. She is a breast cancer survivor and so we compared chemo stories.
When Charlotte came in from the store she made home made biscuits and cooked up some sausage. Poor thing she went to all that trouble but I just could not eat very much, but it was good. I was still having problems eating any thing that reminded me of the hospital. I also had to be careful saying that something sounded good because she would head to the store to get it. I know some days she would run to the store three or four times a day.
Just a few pictures showing that I am getting better.
I had to wear the oxygen censor on my ear, so I told the grandsons that poppy was wearing and earring.
I did not get to eat any solid food until the night before I was to get to go home. So I ordered several different things. I could only take maybe two or three bites of each, I guess the chemo made every thing taste wearied.
I was told that this first chemo was very aggressive. I did get pretty sick with the d word and the v word. I was on a liquid only diet, to keep me from getting to dehydrated they kept giving me liquids through my port. In fact I was receiving so much liquid that I was swelling up, in fact I swollen so bad that I was having liquids coming out of the pores in my arms. I would be laying there and I would have some water just shoot out my arm and on to the bed.
I remember when the nurses came in with mask and gloves, they told my wife that I was now neutropenic which meant my white blood count was very low. I don’t remember what day it was but I woke up with a sharp stabbing pain in my right side. I told Charlotte to call the nurse but she did not need to for I was screaming so loud that I know they could hear me. I had nurse running around trying to help me. I did not know what was happening, so I told Charlotte to call our son. Even though he was at work I told her that I did not want her hear by her self in case something happened. She told me later that while she was on the phone with him that he could hear me and that he would be there shortly. Working for the fire department they take family illness very seriously and they told him to go. Finley I was given enough Morphine that it took the pain away, never did figure out what it was but by now I did not care for I wasn’t hurting any more.
After spending I think it was 17 days in the hospital with the best care the nurses could give me I was able to go home. Before I got sick my wait was 235 pounds when I left the hospital I was down to 188 pounds. Thanks to my favorite nurse my wife of course I was getting better each day. I give God all the praise for giving the doctors and nurses the wisdom to treat me. I have chemo treatment every three weeks. after my second chemo I had no bad side effects in fact I felt good. I was weak but I managed to go to Sunday school, we recorded the church service so we could watch it at home.
In April of 2017 I had an Aneurysm of the artery in my lower left side of my belly. The end of June or the first part of July I started having pain in my stomach. I was not sure what was going on. I could not sleep on my sides so I would get up and try to sleep in my chair. This had been going on for about three weeks, my belly was getting so hard and I just could not eat very much. Finally I called my Gastrologist, My appointment was a good three weeks away, meanwhile I was sleeping in my chair and my belly was getting harder.
When I got in to see Doctor T. He asked me where I was hurting, then he examined me and was quiet concerned how tight my belly was. He wanted me to have an MRI so I had to wait another week to have it done. The day that I had the MRI he called me that afternoon and told me that he was very concerned on what he was seeing. He looked at the MRI that I had taken after the Stint they had installed back in April and what he was seeing in the MRI that I just had taken.
Dr. T Said he wanted me to have a biopsy taken of what he was seeing in the MRI, but they could not get me in for at least eight days. He did not want me to wait that long so he asked if I would be willing to see a cancer doctor. He got me in to see a doctor at the Harrington Cancer Center. I went to see him on August 2nd. 2017. Dr.T and Dr.Z looked over the MRI and so when I got to the dr. office he said that he would like to do a bone marrow biopsy on my hip so we did it right in the office. After he did the first biopsy it came up dry so he asked if he could take a second one, I told him to go ahead, it also came up dry. I was told that I had cancer of the lymph nodes. I was admitted to the hospital that same day, then August 5th. they did the Biopsy of the lymph node in my belly plus they went ahead and installed the port for them to do my chemo. August the 6th. I had my first chemo treatment in the hospital.
I will not be publishing any thing for a while. I have been diagnosed with Non Hodgkin’s Lymphoma. I have already had one Chemo treatment and do another this Friday. I plan on stopping my Blog until I have recovered. Thank all of you for supporting me over the last few years.
Happy father’s day to the father of my best friend and wife. Even though I did not get to know him very well due to him passing shortly after our marriage. I feel I got to know him through his kids.
I am wearing his wedding band. I lost mine several years ago when I had lost all my weight. My dear sweet Mother-in-law gave me Earl’s and I have been wearing it ever since. Oh by the way I have gained a lot of my weight back oh well.